Resumo

SAN MARTIN OSSES, Verónica  e  OSORIO SPULER, Ximena. Experiences of parents of children with cleft lip palate regarding care in the different stages of surgical treatment. Enfermería (Montevideo) [online]. 2021, vol.10, n.1, pp.44-59.  Epub 01-Jun-2021. ISSN 1688-8375.  https://doi.org/10.22235/ech.v10i1.2411.

The nurse is one of the healthcare professionals in charge of providing care to the patient with cleft lip palate malformation during the evolution of the treatment. However, there are not enough national or international studies regarding the parents' experience with the care that their children received, due to which the concern arises to investigate the experience of a group of parents from the south of Chile regarding the care that their children received from a professional nurse during the evolution of their child's disease. The objective is to unveil the experience of the parents of children with cleft lip palate regarding the nursing care received since the child is diagnosed until he/she is submitted to the surgical treatment, in the Hernan Henríquez Aravena Hospital during the first semester of 2019. It is a qualitative study with a descriptive phenomenological approach, done through an in-deep interview, field notes and audio recordings. Regarding the results, from the experience and the narrations of the parents, categories and subcategories arise allowing analyzing more clearly the investigation. These categories are: negative emotions experienced, experience with wealth care and expectations from nursing care. In conclusion the parents receive a permanent nursing invisibility, often confusing their care with the one provided by technicians and/or other healthcare professionals. Regarding nursing care, they express gratitude, but without distinction of who provided it, just to the healthcare team in general.

Palavras-chave : cleft palate; anxiety; nursing; nursing care; emotions.

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