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Enfermería: Cuidados Humanizados

Print version ISSN 1688-8375On-line version ISSN 2393-6606


LAGOS ANTONIETTI, Keila; RIVAS RIVEROS, Edith  and  SEPULVEDA RIVAS, Catalina. Representations and perspectives of primary caregivers of children with chronic kidney disease. Enfermería (Montevideo) [online]. 2022, vol.11, n.1, e2615.  Epub June 01, 2022. ISSN 1688-8375.


Pediatric chronic kidney disease (CKD) is a serious health problem that affects the life of the adults and generates psychosocial impact on the family network.


To reveal the representations and perspectives of primary caregivers of children with chronic kidney disease.


Study with phenomenological design administered in 9 informants, collection of information through in-depth interviews, category analysis, triangulation by researcher, safeguarding the rigorous criteria of Guba and Lincoln, and respect for the ethical principles of Ezekiel Emanuel.


The meta categories “living the disease”, “highly demanding disease” and “support networks present” emerged.


Coping with the disease is threatened by physical fatigue, uncertainty, and alteration of support within and outside the family structure. A similar result is found in the base study. The management of the child is carried out by the mother in almost all the activities associated with its treatment.


Women provide care invisibly and continuously. It is necessary to make it visible as a social problem, to establish policies with a gender perspective that determine corrections of inequities that cultural stereotypes provide, as well as to make visible the need for greater nursing intervention as support for informal care.

Keywords : child care; chronic kidney failure; parents; gender identity.

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