Abstract

ARIAS BECERRA, Nidia Johana et al. Caregiving Practices for Children with Disabilities Constructed by Caregivers. Enfermería (Montevideo) [online]. 2021, vol.10, n.2, pp.191-203.  Epub Dec 01, 2021. ISSN 1688-8375.  https://doi.org/10.22235/ech.v10i2.2485.

Many elements, including practices, mediate the work of caring for children with disabilities in early childhood. As a result of the disability and age of the children, their caregivers commonly become responsible for their well-being. Understanding the practices of caregivers allows optimizing and implementing functional routines that promote the well-being and quality of life of children and their caregivers. To understand the practices of caregivers of children aged 1-6 years with disabilities at the Instituto de Capacitación Los Álamos (Itagüí, Colombia). Qualitative study focused on grounded theory. The participants were twelve surrogate mothers from the institute; a convenience sampling was carried out until theoretical saturation. The practices consisted of care routines, including activities specifically for children with disabilities such as massages, therapies, adaptations of the space for postural control and participation. Moreover, activities such as feeding and massages are equally important when caring for a child with a disability. Caring for children with disabilities involves multiple activities and practices specific to the child's condition. Despite their difficulty, they become immersed in a compilation of routines incorporated into the family's daily life.

Keywords : children with disabilities; caregivers; childcare; everyday activities.

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